Living a Life in Fear

It was very helpful to read alot of the posts here and know I am not alone. Sadly this is the year I have been diagnosed with UCTD and I feel like I live in complete fear.
My fatigue seems to hit me at random moments and I am prone to collapsing from exhaustion although I've done nothing that would merit me being exhausted! I am afraid to go in public for fear of a sudden flare up. Yesterday my husband had to carry me from the car to put me in bed. Here I lay, day 2, in bed and scared to have an episode without anyone around. I don't usually drive either because I become weak and severely fatigued. Does anyone have this same issue and if so, how can I deal with this? I'm tired of crying and feeling like I'm a burden to the world.

I know it's been five months since your post, but I thought I would reply anyway. I know exactly how you feel and I feel it daily too, although not quite to the same extent as I just about manage to get myself around the house. If you do read this and want to talk, do contact me or post again. I hope you feel better about things at the moment.