Thanks for starting this forum!

I was dx'd with UCTD with Raynaud's a couple of years ago. Except for the Raynaud's website, I never felt I fit anywhere. Yes, I have a few lupus-like symptoms and some RA, plus a host of odd dermatological issues. Not to mention the strange symptoms that seem to fit into all Autoimmune categories such as insomnia.

While I know that none of us have the same exact symptoms, it's comforting to find others to share with. Especially since the very name of our dx suggests to people who don't understand that we are not really sick.

Thanks again!

I So agree...I wish more people could see this site..I feel more phycially "crippled" almost with each day as new symptoms come and go, but mostly come...very few "go". It should have a better name, but in the medical community, the word "undifferentiated" IS perceived as real...however, since it doesn't come with a set of instructions how to treat us, we often get swept under the rug. I LOVE when a doctor will tell me: That's OK, we will figure it out...it's when a doctor says (as my GP did) "Well, since it doesn't have a name, I can't comment on anything".
So I had to get "it" a name. I started with Raynaud's about 30 years ago. I never thought to tell anyone because I didn't think it was "serious" even though one of my toes was a lovely royal blue one day...then autonomic neuropathy, then UCTD.
It ALL connects. I thought I was through "fighting" once people started to hear about gastroparesis....now I almost feel like I am starting all over again..however, there is safety and power in #'s ! so we have to march on!
THANKS FOR STARTING THIS FORUM!
Laura

I am glad I did too! I know what we have fits in an autoimmune forum, but I think that it also gives a whole different set of circumstances that we are challenged with. The "Undifferentiated" automatically leads doctors to think it is MILD.... I beg to differ!!!

I am so very glad that this is gaining more people and I look forward to checking in to see posts!!!!

-Y

[b]ABSOLUTELY!