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Not yet diagnosed! Please help

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1Not yet diagnosed! Please help Empty Not yet diagnosed! Please help Tue Apr 26, 2011 4:13 am

paperbagprincessNZ


New to UCTD Forum

Hello all,

I'm not sure how many people use this site, but it's worth a shot. I haven't met a lot of people who're able to help me.

I don't want to bore you with my story, but it's been a long time coming.

I'm 21 years old.

My symptoms are-
Joint pain in my knees along with swelling and stiffness.
My fingers are puffy, stiff and swollen.
My joints click, grind and pop. They're worse when I walk up and down stairs/hills. Sore all the time, worse at night. Stiff in the morning. NSAIDS (over the counter) help a lot!
Raynaud's Disease
Dry mouth (it hasn't been tested, but I drink so much water and my mouth always feels dry)
Dry, stinging, burning eyes (hasn't been tested, just what it feels like to me)
Odd rashes on my face and chest.
Oral and nasal ulcers


My blood tests-
Complete Blood Count- Normal
CRP <3 (0-7)
Rheumatoid Factor 9 (0-15)
ANA- positive 1:80 speckled.

I've had my ANA tested three times over the past 3 years and they've all been positive 1:80.

My doctor say she's not concerned because 1:80 is low.


I have been given a diagnosis by a rheumatologist of Fibromyalgia, but he took 10 minutes to look over me and didn't do any further testing. I'm also not convinced because I don't have wide spread pain. Another doctor who's look at my symptoms and blood test said he thought it was "an auto-immune inflammatory process"


I'm basically asking, is 1:80 ANA high enough to be given a diagnosis of UCTD?

Thank you!

2Not yet diagnosed! Please help Empty Welcome Mon May 02, 2011 4:49 am

Admin


Admin

I have no idea re: the ANA because my ANA is totally normal. I do test positive for Anti-Alpha Fodrin IgA and that is one of the reasons I have the diagnosis.

I think if you are unhappy with the time your rheumy spent with you, that you seek another opinion. I have had to go to many doctors to get at least somewhere...

They have tried to give me the fibro diagnosis over and over, but I have had 3 specialists refute that as a diagnosis. Keep advocating for yourself.

https://uctdsupport.forumotion.com

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