Congrats on the New Forum

inga · 1 Congrats on the New Forum Wed Nov 03, 2010 1:37 pm

inga

New to UCTD Forum

Posts : 2
Join date : 2010-11-03

This is awesome. I am so thrilled you started this forum for those with UCTD, which is a lot of people! Very Happy

Be patient but there will soon be more members!

Even though I have a + lip biopsy for SjS, I have only a +ANA and my SSA/SSB is negative, so really, I feel more like I have UCTD. (Although I am technically diagnosed with SjS)

I do have PN, distal renal tubular acidosis, lung fibrosis, diffuse esophageal spasm, diverticulosis and cardiac arrhythmia, as part of the clinical picture.

Undifferentiated is not Uncomplicated!

ynevar · 2 Welcome Inga! Wed Nov 03, 2010 4:47 pm

ynevar

New to UCTD Forum

Posts : 34
Join date : 2010-11-02

I am so very glad that you joined here!!! And I am so very glad that I made this forum!

Please feel free to send me any links you might have on UCTD, I will post them as part of a permanent ongoing thread so people can use it as a resource.

Thanks!

-Y

Nanna6 · 3 Re: Congrats on the New Forum Thu Nov 04, 2010 7:55 am

Nanna6

New to UCTD Forum

Posts : 20
Join date : 2010-11-04
Age : 68
Location : Salem, OR, USA

It is nice to have a UCTD website and I look forward to it's growth. I will gladly pass the word around to the other support sites I'm on.

UCTD really does need so much more acknowledgement, but then so do most Autoimmune Diseases. Back in the early '80s when there were almost no websites for FMS we started building them little by little and now look, there's a FMS commercial on everyday. So if we keep pushing UCTD they won't be able to ignore it any longer and will have to acknowledge us. So thanks for taking the step!

((hugs))
Caryn

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Congrats on the New Forum

1 Congrats on the New Forum Wed Nov 03, 2010 1:37 pm

inga

2 Welcome Inga! Wed Nov 03, 2010 4:47 pm

ynevar

3 Re: Congrats on the New Forum Thu Nov 04, 2010 7:55 am

Nanna6

4 Re: Congrats on the New Forum

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